|Moderator: Melissa Goldstein, George Washington University|
15.1 16:10 Public Engagement in Genomics: Community Perspectives. Easter Carla*, National Human Genome Research Institute
The profound advances in genomics over the past decade are revealing exciting opportunities to use genomic information. These advances are making the 'language of genomics' relevant to patients (and friends and relatives of patients) ' which means all of us. The National Human Genome Research Institute (NHGRI) has a long-standing commitment to genomics education and community engagement. NHGRI has brought together community liaisons and health advocates representing diverse populations to engage communities around genomic science, to inform and share perspectives about genomic research, and to impact the focus of research. The speaker will discuss NHGRI's quest to build relationships and trust with communities through understanding diverse communal views and priorities; the development of programs, tools, and information for various communities; and the identification of potential areas of collaboration with communities.
Genome Governance. Andrew W. Torrance, K.U. School of Law and MIT Sloan School of Management.
Ethics and Genomics: Humans and Beyond. Debra JH Mathews. Johns Hopkins Berman Institute of Bioethics.
The Convention on Biological Diversity and Biodiversity Genomics. Scott Miller, Smithsonian Institution.